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In March of 2018, our team of climbers will set out to summit Orizaba, the tallest peak in Mexico at 18,851′. Our mission is to help children with Sanfilippo Syndrome, a rare and fatal genetic disorder.

The Climb Begins

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Live GPS: Track Us on the Mountain

We’ll be wearing a GPS tracker as we advance up the mountain in pursuit of the summit. You can track us here. A note: just because the tracker hasn’t transmitted or moved in a while doesn’t mean we’re in trouble. It’s often paused while we’re at camp or awaiting a weather window.

Our first documentary film, The Weight of a Mountain, is currently screening around the country. We are filming our Mexico climb and may continue the story in film. Here’s the trailer for The Weight of a Mountain:

The Climbers

Carl Kapes

Carl Kapes

Team Sanfilippo / father of Ryan and Brayden

Dan Salvo

Dan Salvo

Creator of "The Weight of a Mountain"

Michelle Berg

Michelle Berg

VP of Patient Advocacy, Abeona Therapeutics

Thierry

Thierry

Father of Zoey

Tim Miller

Tim Miller

CEO, Abeona Therapeutics

Logan Ormeroid

Logan Ormeroid

Levi's sister

Jeremy Mask

Jeremy Mask

Brother of Ryan Mask