In March of 2018, our team of climbers will set out to summit Orizaba, the tallest peak in Mexico at 18,851′. Our mission is to help children with Sanfilippo Syndrome, a rare and fatal genetic disorder.
The Climb Begins
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Live GPS: Track Us on the Mountain
We’ll be wearing a GPS tracker as we advance up the mountain in pursuit of the summit. You can track us here. A note: just because the tracker hasn’t transmitted or moved in a while doesn’t mean we’re in trouble. It’s often paused while we’re at camp or awaiting a weather window.
Our first documentary film, The Weight of a Mountain, is currently screening around the country. We are filming our Mexico climb and may continue the story in film. Here’s the trailer for The Weight of a Mountain:
The Climbers
Carl Kapes
Team Sanfilippo / father of Ryan and Brayden
Dan Salvo
Creator of "The Weight of a Mountain"
Michelle Berg
VP of Patient Advocacy, Abeona Therapeutics
Thierry
Father of Zoey
Tim Miller
CEO, Abeona Therapeutics
Logan Ormeroid
Levi's sister
Jeremy Mask
Brother of Ryan Mask